tag:blogger.com,1999:blog-6714987075818601801.post6638212244470875467..comments2013-08-12T23:01:31.187-04:00Comments on Ramblings of a Heart Momma: Progress..Natashahttp://www.blogger.com/profile/18396453757114730126noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6714987075818601801.post-3429761300670856552010-12-16T19:09:21.554-05:002010-12-16T19:09:21.554-05:00My daughter, Anna Grace, is now 11 months old and ...My daughter, Anna Grace, is now 11 months old and has HRHS. She had a tough time with feeds as well. We stayed in the hospital for weeks just working on feeds. It was to the point where they were talking about a G tube to get us home. But, after a few weeks of working on it and working on it I finally convinced them to take out the NG tube even though she wasn't meeting her "goals" just to seee if that would help her be more comfortable eating. They said it could come out for 24 hours. If she didn't meet her goals then it would go back in. But what do you know, it did the trick! But, she was 5 weeks post-op before we tried that. Be patient... with the baby... with yourself. Ignore the comments. This is common and normal. The therapists should know that......Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6714987075818601801.post-53004290873324963322010-12-16T08:10:18.307-05:002010-12-16T08:10:18.307-05:00You are strong and Evan loves you and ignore the i...You are strong and Evan loves you and ignore the insane comments they are making. I don't blame you for being upset...I would have been outraged. I was super-sensitive when Hope was in the hospital and I took it out on a few nurses. I don't regret doing that at all. You are Evan's advocate and know what he needs and what he has been through better than any therapist.<br /><br />Hope came home on a feeding tube and did much better with a bottle at home. She would take about 10mls at the hospital, but would take the whole bottle when we got home. She was only on the tube for 2 weeks and then we took it out for good. I truly believe if you go home on the tube...Evan will do the same.<br /><br />Evan may be behind for a little while, but no worries. He has been through a lot in his short life and deserves to get a break. I figure Hope has spent 2 months in the hospital between all stays, so I set her goals at what a 13 months old should be doing (she is 15 months). <br /><br />I know it is hard to stay positive, but Evan is doing GREAT! I am going to continue praying that he will be home with his family for Christmas.Wodzisz Familyhttps://www.blogger.com/profile/03402962907991995167noreply@blogger.com