We are just 42 days away from Evan's heart cath and surgery. Barf.
Evan had his quarterly cardiology check up this past week. He is almost 30 pounds and still 35-36" tall. O2 sats were still low 80s and his blood pressures were good. He didn't get a complete echo because he will be having an extensive echo following his heart cath while he is still under sedation. Heart function still looks great, though, and no leaky valves! Evan was a total angel during his echo, thanks to Mickey Mouse and a watermelon ring pop. However, he threw his lollipop on the floor while we briefly waited for his DR to come in. Of course, I tossed it, and offered him a new one. Unfortunately, it was blue raspberry flavored and Evan was not ok with the change. He threw his first major meltdown in public and refused to calm down so that I could talk to his Dr. Don't let Evan's happy-go-lucky demeanor fool you, he inherited quite the Colombian temper and is not afraid to use it! ;)
I would be happy to donate. I live in Clearwater and my granddaughter is HLHS and had her Fontan last year. Who do I need to contact? I have been told that you can't donate/hold blood for a specific person so hopefully this is not true. I understand the desire to know the blood that is being used for your child.
ReplyDeleteHi! If you will email me (nsawyer723@gmail.com) I will send you the details! :) You can, in fact, donate blood to be used for a specific person, just have to set it up with the blood bank first and have the information. If the blood isn't used for the specified person, it will just go into the regular bank. Thank you!
DeleteWould donating towards an account set up for you help at all? I am b- so I can't help with direct donation but would love to help somehow?
ReplyDeleteHey Tamara, we do not have a donation account set up for Evan but thank you for the offer! We will, however, accept prayers! :)
DeleteIm o+ in plant city. My email is skarlitbegoniah@gmail.com. I couldn't find a way to email you in here.
ReplyDeleteHey! I found your blog through the FB Heart Mamas page. My son, Derrick, will be having the Fontan this summer too. I'm looking forward to following along on Evan's journey!
ReplyDeleteHey Carolina! We will be praying for your son Derrick as well! <3
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