Wednesday, June 12, 2013

Home Sweet Home.. Part Deux.

As many of you know, Evan was readmitted into the hospital last Monday for bilateral pleural effusions, aka fluid in both sides of his chest. It was an emotionally exhausting 5 day stay that included an unwanted room in the PICU, angry nurses, tears of frustration, and finally a much happier little boy. We had such a horrible experience in the PICU that I am choosing to not relive it, therefore I will not be sharing the details of our experience. Lets just say heart kids belong in the cardiac icu for a reason. 

We were discharged home Friday afternoon and let me tell you, Evan has been non-stop since we walked out of the hospital! He is completely back to his normal self and has way more energy than I imagined he would! Today was his post-discharge follow up at the cardiology office and he ran around the whole waiting room for almost an hour before being called back. He made sure to stop and say hi to every single person waiting too. I can't believe how outgoing he is and just how happy he is in general. This kid has more strength than I could ever have, especially for just having open heart surgery 3 weeks ago! The cardiologist was super impressed with Evan today, his heart and lungs sounded perfect and his chest x-ray was completely clear, thank God! You know what the best part of the day was? Watching Evan run around for so long without taking a break and without turning blue. I am just.. just so amazed. I am so thrilled Evan is POST FONTAN and know that he can now live to his fullest potential. 

Saturday night we went to dinner with family for my husband's birthday. My father in law mentioned to our waitress that Evan had his third open heart surgery just 2 weeks ago and she was just blown away because he looked so good. Then she turned to me and told me she was amazed at how calm and at peace I was for just having gone through something so major with my child. I just smiled and said thank you, but I have been thinking so much about her words and keep coming to the same conclusion. How can I not be at peace when I have Jesus? How can I be afraid if I trust in my Father? How can I not have a positive attitude when my God is always faithful? I don't want Evan to ever be afraid of his future, or lack of a future. I want him to trust the Lord with all of his heart and I hope he will see that in both Scott and I.. We love our little man and don't ever want to set limitations for his future, unless we are talking about dating, then the answer is never. ;)

Please remember to keep all of our heart buddies going in for their Fontans this summer in your prayers. Going through major surgery with your preschooler is absolute madness and the anxiety building up to the date really sucks. 

OH! I almost forgot, Evan has been talking so much more in the last few weeks! He has now added "moo moo", "all done", "baby", "pizza", "coke", "eat pizza", "thank you", and "jake" to his vocabulary! Yay! :)

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