Wednesday, December 29, 2010
A very hungry baby..
A couple hours after the surgery, the nurse practioner came in and said she was going to go ahead and take out the LA line in his chest and his pacing wires since there has to be a surgeon in the hospital when they take them out, just in case there's bleeding around the heart. They put an IV into his arm since they have to have some kind of access while he's here, and then she removed the lines. The worst part was taking off the tape lol I was surprised at how well Evan handled it all. He went right back to sleep when it was finished, and even slept thru the echo scan afterwards. He's been sucking on his pacifier for over 5 hours now, which has never happened before. I can't wait to feed him tomorrow!
We've also been going thru a lot of discharge stuff today. We've gotten his prescriptions filled, I am going to pick them up tomorrow. One of the nurse practioners is faxing all of Evan's heart information to his pediatrician for his appointment on Monday. Evan's first out patient cardiologist appointment is set for 10 days after discharge. We got all kinds of syringes to administer medication and his pill cutter and crusher have been ordered. I've got all of his paperwork ready in his binder. It's been a busy day! Tomorrow we will just be feeding him and if he handles it all ok, then we should be getting out of here Friday afternoon. :)
Hopefully I will be posting my next update from my office at home! But if not, that's ok. As much as I want to be home, I have learned that things change quickly, and Evan does everything on his terms, so if he's not ready to go home, we will be just fine letting him recover at the hospital until he is ready.
I will leave off with a quote from one of the doctors, it's from this morning during rounds when he was talking to the cardiologist.. "Apparently no one told the baby he has hypoplastic left heart.." Evan is just such a miracle, he proves it every day.